Merryn’s Story: Severe ME Week 2020
Merryn’s Story: Severe ME Week 2020 Read More »
Caring for someone with Very Severe M.E is both an […]
SevereMEWeek
Severe ME Week 2020: Sophia’s Story
Severe ME Week 2020: Sophia’s Story Read More »
The 8th August is Understanding & Remembrance Day for Severe
My Severe ME by Alison Love
My Severe ME by Alison Love Read More »
It all started for me in 1992, when I was
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020 Read More »
Katie Meehan, Social Media Manager In the run-up to Severe
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019 Read More »
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019 Read More »
They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.
Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019 Read More »
This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.
MEA Website Survey: Illness Severity and Definitions | 05 August 2019
MEA Website Survey: Illness Severity and Definitions | 05 August 2019 Read More »
This month we’re asking about your level of illness severity and for a discussion around definitions.
Introducing Severe M.E. Week from the ME Association | 05 August 2019
Introducing Severe M.E. Week from the ME Association | 05 August 2019 Read More »
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.