Merryn’s Story: Severe ME Week 2020
Merryn’s Story: Severe ME Week 2020 Read More »
Caring for someone with Very Severe M.E is both an […]
SevereME
Severe ME Week 2020: Sophia’s Story
Severe ME Week 2020: Sophia’s Story Read More »
The 8th August is Understanding & Remembrance Day for Severe
My Severe ME by Alison Love
My Severe ME by Alison Love Read More »
It all started for me in 1992, when I was
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020 Read More »
Katie Meehan, Social Media Manager In the run-up to Severe
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019 Read More »
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
Top 7 Tips for Claiming Disability Benefits with M.E. by Ann Innes | 14 August 2019
Top 7 Tips for Claiming Disability Benefits with M.E. by Ann Innes | 14 August 2019 Read More »
The MEA’s Welfare Rights Adviser provides her top-tips for people with M.E. when applying or renewing ESA and PIP.
The Telegraph: Narrow doors and no hoists: why disabled women can’t have life-saving cervical cancer screening with Jo Moss | 10 August 2019
All women are invited to cervical screening, and all women should be able to have access to a test.
Severe ME Day: Caring for someone with Severe M.E. by Sarah Boothby | 08 August 2019
Severe ME Day: Caring for someone with Severe M.E. by Sarah Boothby | 08 August 2019 Read More »
Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.
The Sun: TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’ | 09 August 2019
Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019 Read More »
Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 Read More »
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
MEA Press Release: Severe ME Day – M.E. sufferers hit out at ‘humiliating’ DWP benefit assessments | 08 August 2019
“Many only succeed in obtaining the benefits they should be entitled to after going through a long and stressful appeal process.” Dr Charles Shepherd.
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019
We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019 Read More »
They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.
Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019 Read More »
This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.
Introducing Severe M.E. Week from the ME Association | 05 August 2019
Introducing Severe M.E. Week from the ME Association | 05 August 2019 Read More »
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019
Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019 Read More »
Severe M.E. Day is approaching in August, and we are asking you to share your stories and experiences.