BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
Myalgic Encephalomyelitis
What do you think about the new NICE Clinical Guideline on ME/CFS?
What do you think about the new NICE Clinical Guideline on ME/CFS? Read More »
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS Read More »
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association ME/CFS Research Round-up
The ME Association ME/CFS Research Round-up Read More »
We report on 5 new research studies and highlight the discovery of bioenergetic defects in the skeletal muscle of people with ME/CFS.
New MEA Leaflets: Prognosis & Quality of Life, Disability Classification & Illness Severity
The new leaflets explain what might be expected from a diagnosis of ME/CFS and how the illness is classed as a disability by the UK Government.
Are you confused by the latest Covid-19 Lockdown and the restrictions now in place around the UK?
We attempt to summarise the situation in England, Scotland, Northern Ireland and Wales as it relates to people with ME/CFS.
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
Ian tells how he had to lower his sporting horizons after being struck down with M.E. Read More »
Ian Lazonby was a vet and a lawyer before glandular fever as an adult led to M.E. He talks about his experience with the condition, how he has recovered to an extent, and has accepted M.E.
Sarah returns to the beginning for her ‘Super Six’ challenge for the ME Association
Sarah returns to the beginning for her ‘Super Six’ challenge for the ME Association Read More »
Sarah Elsby has begun her impressive walking challenge in support of her mother who has M.E. Please donate and help the ME Association do more for this vulnerable community.
ME Association response to BACME Position Statement on the Management of ME/CFS
ME Association response to BACME Position Statement on the Management of ME/CFS Read More »
The ME Association has given a cautious welcome to the BACME position statement, but still has a number of concerns and questions.
New ME/CFS Medical Education Initiative Launched in Scotland
New ME/CFS Medical Education Initiative Launched in Scotland Read More »
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
Virginia Water Magazine: Why aren’t people getting better from Covid-19? With Dr Charles Shepherd
Dr Charles Shepherd wrote a piece for The Virginia Waters Magazine where he shared his insights into Post-Long Covid-19.
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
ME Association Leaflet: The Flu and Pneumonia Vaccines 2020 – 2021 & Website Poll of Flu Vaccine Reactions in ME/CFS
We have a new free leaflet on this year’s Flu Vaccination, and a Website Poll asking you about any reactions you might have had to the vaccine.
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid Read More »
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS Read More »
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.
Forward-ME: NICE issue clarification about new Chronic Pain Guideline & expand on statement for GET in Post-Covid-19
NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
The ME Association Pneumonia and the Pneumococcal vaccine – do you need this protection?
The ME Association Pneumonia and the Pneumococcal vaccine – do you need this protection? Read More »
Dr Shepherd answers a question about the pneumonia vaccine and provides the information you need to make an informed decision.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.