Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
ME/CFS
America’s top covid doctor turns ME/CFS into a subject for general discussion as the pandemic deepens
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ Read More »
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd Read More »
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
Free Leaflet: DecodeME – The Largest Ever Genetics Study!
Free Leaflet: DecodeME – The Largest Ever Genetics Study! Read More »
A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.
Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd
Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd Read More »
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
MRC: Largest Genetic Study into ME is Launched!
MRC: Largest Genetic Study into ME is Launched! Read More »
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
These people have been sick with coronavirus for more than 60 days – doctors don’t know why | Washington Post | 11 June 2020
While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.
Carers Week 2020: Selina’s Story – Parenting with ME
Carers Week 2020: Selina’s Story – Parenting with ME Read More »
After many years of fluctuating neurological conditions in 2018 my health changed for the worse.
The ME Association End of Week Research Round-up and Research Index Update | 29 May 2020
The ME Association End of Week Research Round-up and Research Index Update | 29 May 2020 Read More »
There were two new research publications this week, and we’ve updated the MEA Research Index.
ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020
“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”
The ME Association End of Week Research Round-Up | 22 May 2020
The ME Association End of Week Research Round-Up | 22 May 2020 Read More »
The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.