BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
GET
ME Association response to BACME Position Statement on the Management of ME/CFS
ME Association response to BACME Position Statement on the Management of ME/CFS Read More »
The ME Association has given a cautious welcome to the BACME position statement, but still has a number of concerns and questions.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
Forward-ME: NICE issue clarification about new Chronic Pain Guideline & expand on statement for GET in Post-Covid-19
NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it! Read More »
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
NICE cautions against using graded exercise therapy for patients recovering from COVID-19
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
ME, Myself and I: Caution and Controversy
ME, Myself and I: Caution and Controversy Read More »
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
The DecodeME Genetics Study: Letters to The Times
The DecodeME Genetics Study: Letters to The Times Read More »
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
Amended Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | 03 October 2019
The influential Cochrane organisation has published an updated review and issued a statement following concerns expressed by the patient community.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
The Guardian: ME and the perils of internet activism | 29 July 2019
The Guardian: ME and the perils of internet activism | 29 July 2019 Read More »
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…
MEA Website Survey: Physiotherapy and ME | 02 July 2019
MEA Website Survey: Physiotherapy and ME | 02 July 2019 Read More »
A new group of health professionals – Physios For ME – are seeking your feedback in this month’s MEA website survey.