Blog Survey: Requesting information about your ME/CFS Diagnosis
Blog Survey: Requesting information about your ME/CFS Diagnosis Read More »
ME/CFS (myalgic encephalomyelitis or encephalopathy/chronic fatigue syndrome) is a complex […]
Diagnosis
MEAW 2021: Health and Social Care Awareness Campaign
MEAW 2021: Health and Social Care Awareness Campaign Read More »
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Thank you for helping with our formal response to NICE!
Thank you for helping with our formal response to NICE! Read More »
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead Read More »
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust,
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS Read More »
The new NICE guideline has removed graded exercise as a recommended management option…
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
New ME/CFS Medical Education Initiative Launched in Scotland
New ME/CFS Medical Education Initiative Launched in Scotland Read More »
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS Read More »
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
Early Day Motion: Researching and supporting people with long Covid-19 symptoms
Early Day Motion: Researching and supporting people with long Covid-19 symptoms Read More »
Carol Monaghan has tabled an Early Day Motion that we would like you to encourage your own MPs to support. A template email is included for you to use.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS Read More »
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
Can you help Cornwall’s NHS ME/CFS Specialist Service find a medical consultant to join their team?
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
Sonja’s mile a day for the MEA keeps her worry at bay
Sonja’s mile a day for the MEA keeps her worry at bay Read More »
“I try to walk a mile a day. There are some days that my legs and brain don’t quite connect. That’s when it becomes quite interesting!”
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
Severe ME: Why is improvement subject to such harsh judgement and not celebrated? Read More »
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The Untold Stories: Severe ME Week 2020
The Untold Stories: Severe ME Week 2020 Read More »
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
A challenge where YOU can help to drive change in medical attitudes towards ME!
A challenge where YOU can help to drive change in medical attitudes towards ME! Read More »
Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
ME, Myself and I: Caution and Controversy
ME, Myself and I: Caution and Controversy Read More »
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.