NHSE Long Covid collaboration: Assessment Tool Testing
NHSE Long Covid collaboration: Assessment Tool Testing Read More »
The ME Association has been part of a NHS England […]
chronic fatigue syndrome
MEAW21: Focus on health & social care and a new website poll
MEAW21: Focus on health & social care and a new website poll Read More »
For ME Awareness Week 2021 we will be discussing health
Secretary of State for Health, Matt Hancock, on ME/CFS & Covid Vaccine Priority
Secretary of State for Health, Matt Hancock, on ME/CFS & Covid Vaccine Priority Read More »
“I want to assure you that we are committed to vaccinating according to need, and you will not be left out or forgotten in this process.”
ME and My Family – A Husband’s View of ME/CFS
ME and My Family – A Husband’s View of ME/CFS Read More »
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
Covid Vaccinations and ME/CFS: Community Feedback!
Covid Vaccinations and ME/CFS: Community Feedback! Read More »
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
LATEST: COVID-19, ME/CFS and the JCVI Priority Vaccination List
LATEST: COVID-19, ME/CFS and the JCVI Priority Vaccination List Read More »
We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.
MEAW 2021: Health and Social Care Awareness Campaign
MEAW 2021: Health and Social Care Awareness Campaign Read More »
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
The International ME/CFS Family Impact Study
The International ME/CFS Family Impact Study Read More »
Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Parliamentary debate on Long-Covid: What should be learned from ME/CFS? Read More »
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
MEA Monthly Poll: Will you have the COVID-19 vaccine?
MEA Monthly Poll: Will you have the COVID-19 vaccine? Read More »
We want to hear your views about having the Covid-19 vaccination and we’d welcome your feedback if you have already had the vaccine.
Free Leaflet: Covid-19 Vaccine Update by Dr Charles Shepherd
Free Leaflet: Covid-19 Vaccine Update by Dr Charles Shepherd Read More »
Dr Shepherd discusses the Covid-19 vaccination programme and issues relevant to people with ME/CFS
Thank you for helping with our formal response to NICE!
Thank you for helping with our formal response to NICE! Read More »
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
New Leaflet: Pensions – obtaining an ill-health pension, prognosis & permanency in ME/CFS
We have published a new leaflet to help people who want to claim early retirement on the grounds of ill-health because of ME/CFS.
New! ME/CFS Family Impact Survey by Dr Nina Muirhead & Cardiff University
New! ME/CFS Family Impact Survey by Dr Nina Muirhead & Cardiff University Read More »
Please complete this quick survey to help improve international understanding of how ME/CFS impacts patients and family members.
We demand changes to ‘Observer’ article
We demand changes to ‘Observer’ article Read More »
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
Covid-19 Vaccine Developments & ME/CFS
Covid-19 Vaccine Developments & ME/CFS Read More »
There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…” Read More »
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
ME Association Covid-19 & ME/CFS Free Range of Leaflets
ME Association Covid-19 & ME/CFS Free Range of Leaflets Read More »
We have updated the range of free leaflets about Covid-19/ME/CFS and the current restrictions and include a new leaflet aimed at Students…
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away… Read More »
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.