MP John Milne writes to Wes Streeting
MP John Milne writes to Wes Streeting Read More »
Under a heading “Concerns regarding ME/CFS Strategy in the Final […]
Metro: I thought I had food poisoning – it was far worse
Metro: I thought I had food poisoning – it was far worse Read More »
I couldn’t get out of bed. I felt drained, constantly.
Parliamentary questions on ME/CFS and Long Covid research funding, and the Epsom and St Helier NHS Foundation Trust service
MP Tom Morrison, Liberal Democrats asked Ashley Dalton, Parliamentary Under-Secretary
BBC News: Martha’s rule rolled out to all acute hospitals in England
BBC News: Martha’s rule rolled out to all acute hospitals in England Read More »
Martha’s rule rolled out to all acute hospitals in England
The ME Association awards Decode ME the Howes Goudsmit Award 2025
The ME Association awards Decode ME the Howes Goudsmit Award 2025 Read More »
The ME Association are pleased to announce that we have
BACME: ME/CFS Tube Feeding Survey
BACME: ME/CFS Tube Feeding Survey Read More »
British Association of Clinicians in ME/CFS (BACME) are conducting a
ME Essential: Winter 2022: Men don’t talk about things – or do they?
ME Essential: Winter 2022: Men don’t talk about things – or do they? Read More »
Along with ME/CFS, David, who also suffers with Postural Tachycardia
ME Essential: Summer 2023: There is always hope!
ME Essential: Summer 2023: There is always hope! Read More »
By Rachel White Before I developed Myalgic Encephalomyelitis, I was
The Times: Medical Misogyny and ME/CFS Research: MEA writes to the Times Editor in response to published letters
The Times published the following letters (9th August 2025) in
Sunday Times: Sarah Boothby: As my daughter died of ME, the state met in secret to blame me
**Trigger Warning: Upsetting Content – also discusses the wrongly assumed
BACME Statement on DecodeME study results
BACME Statement on DecodeME study results Read More »
BACME has sent the ME Association the following statement to
The Guardian: Scientists find link between genes and ME/CFS
The Guardian: Scientists find link between genes and ME/CFS Read More »
“These provide the first robust evidence for genetic contributions to
Decode ME release initial DNA results!
Decode ME release initial DNA results! Read More »
The DecodeME team announce results from the analysis of 15,579
Scotland: Two Leading Long Covid Charities Resign from Strategic Long Covid Network
Scotland: Two Leading Long Covid Charities Resign from Strategic Long Covid Network Read More »
Today (05.08.25), Long Covid Scotland and Long Covid Kids have
Welfare Reform: When Promises Clash with Practice: What Stephen Timms Didn’t Say About Co-Production
By Ella Smith, ME Association Welfare Rights Consultant In a
Severe ME Week 2025: 500 Days in Bed
Severe ME Week 2025: 500 Days in Bed Read More »
This year, for Severe ME Awareness Week 2025 (4th-10th August)
Unity Lottery Online Payment Page Update
Unity Lottery Online Payment Page Update Read More »
The Unity Lottery online payment page is due to be
The Sick Times reports on clinical trials involving Rapamycin for Long Covid and ME/CFS
The Sick Times reports on clinical trials involving Rapamycin for Long Covid and ME/CFS Read More »
On 29th July, The Sick Times website published an article
ME Essential: Spring 2021: Virtual Adventures
ME Essential: Spring 2021: Virtual Adventures Read More »
I have my own social life for the first time
BMJ: Government plan to train doctors on ME/CFS “does not go far enough,” campaigners say
Yesterday (28.07.25), the British Medical Journal (BMJ) published an article