Severe ME Week: Poems
Severe ME Week: Poems Read More »
Poems (4 of 4 website blogs)
Severe ME Week 2023: Katie’s thoughts on relative improvements
Severe ME Week 2023: Katie’s thoughts on relative improvements Read More »
Living this life and deteriorating is hard beyond belief to
Severe ME Week 2023: John’s Story
Severe ME Week 2023: John’s Story Read More »
Conditions on the ward, similar to the other wards he
Severe ME Week 2023: Leanne’s Story
Severe ME Week 2023: Leanne’s Story Read More »
But the hardest symptoms to explain to people are how
Severe ME Week 2023: Sylvia’s Story
Severe ME Week 2023: Sylvia’s Story Read More »
The brain fog overwhelms my ability to comprehend the multiple
Severe ME Week 2023: Poems
Severe ME Week 2023: Poems Read More »
Poems – (3 of 4 website blogs) I will wait
Severe ME Week 2023: Katie’s Story
Severe ME Week 2023: Katie’s Story Read More »
It’s heart-breaking when the people we trust don’t trust us,
Severe ME Week 2023: Mike’s Story
Severe ME Week 2023: Mike’s Story Read More »
I have had severe M.E. for 26 years. I fluctuate
Severe ME Week 2023: Carla’s Story
Severe ME Week 2023: Carla’s Story Read More »
Last year, my whole life is shattered as I developed
Severe ME Week 2023 – Zoe’s Story Part II
Severe ME Week 2023 – Zoe’s Story Part II Read More »
There are many people who end up completely unable tolerate
Severe ME Week 2023: Zoe’s story – Part I
Severe ME Week 2023: Zoe’s story – Part I Read More »
My brain starts to physically hurt, much like a muscular
Blood Donation: ME/CFS and Long Covid
Blood Donation: ME/CFS and Long Covid Read More »
Blood donation is a common voluntary procedure that can help
Long Covid – Cochrane review of microclots and apheresis
Long Covid – Cochrane review of microclots and apheresis Read More »
Yesterday (26.07.23), the Cochrane Library published the following article ‘Plasmapheresis
New Booklet on Travel now available!
New Booklet on Travel now available! Read More »
The ME Association has updated all the information relating to
Do you have experience of severe or very severe ME/CFS?
Do you have experience of severe or very severe ME/CFS? Read More »
During Severe ME Week 2023 (7th – 13th August), we’d
Genetic risk factors for Long Covid and ME/CFS – research findings from Precision Life
Genetic risk factors for Long Covid and ME/CFS – research findings from Precision Life Read More »
PrecisionLife has shared an article on their website ‘PrecisionLife Identifies
![IMAGE DESCRIPTION: A screenshot of the article on BMJ website with the title: Dr Shepherd sends a rapid response to the BMJ. There is an image of Dr Shepherd (top right) with a quote from his rapid response "They [NICE] concluded that the clinical trial evidence for the use of CBT and GET was of very poor quality and acknowledged that people with ME/CFS have consistently reported that CBT was ineffective and that GET made their condition worse - some ending up in wheelchairs as a result of receiving harmful advice on activity management" The ME Association logo (bottom right)](https://i0.wp.com/dev.web0.lnetdev.uk/wp-content/uploads/BMJ-Response.png?fit=1200%2C628&ssl=1)
Dr Shepherd sends a rapid response to the BMJ
Dr Shepherd sends a rapid response to the BMJ Read More »
Dr Charles Shepherd, Honorary Medical Adviser to the ME Association
The ME Association and NICE robustly defend the clinical recommendations for managing ME/CFS
The ME Association has strongly challenged claims made by a